Supporting autistic women
So, you think you may be autistic? 🔎
Step 1 - Take some screening tests ✅
Embrace Autism has a whole host of screening tests which are insightful and can be used to inform whether or not you wish to proceed with an assessment. The AQ test, or Autism Quotient, is one of the most commonly used screening tools. Additionally, the CAT-Q test is particularly useful for women as it detects camouflaging behaviours.
Step 2 - Do your research! 🔬
Why do you think you may be autistic? What are the adult autism services like in your area? Do you identify with common autistic experiences? Note down extensively how your experiences overlap with the experiences of autistic women in preparation for contacting your GP or private practice.
Step 3 - Choose your diagnostic pathway 👣
Decide if you want to seek an assessment or if you wish to self-diagnose. Both of these options are completely valid ways to be in the world with many people opting for a self-diagnosis. This is widely accepted within the autism community and some choose never to seek a medical diagnosis. However, some people, especially if you aren't sure yourself, may prefer to undergo an assessment.
Step 4 - The referral process [if in the UK] ➡️
If you choose to seek an assessment, you will need to schedule an appointment with your chosen provider. Typically, if opting for the NHS route, you will begin by having an appointment with your GP who will make a referral for an assessment on your behalf if they feel fit. Many women have reported long waiting times of a few years prior to undergoing an assessment. If going down the private route, you can self-refer for an assessment and may be seen within a few months.
Step 5 - What to expect from the assessment 📋
Assessment processes vary considerably depending on your provider and location but usually involve interviews with an autism specialist and in-depth questionnaire forms. Danielle Duggin's blog details her experience of seeking an NHS assessment. My personal experience of a private assessment through The Adult Autism Practice consisted of an optional initial consultation, lengthy intake forms, online tests and three in-depth interviews with a clinical psychologist.
Step 6 - The results 📆
Regardless of the result of your assessment, it will likely be a lot to process. Be kind to yourself and reach out to those around you, online communities, resources and professionals for support.